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Topic: Questions and Answers |
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Posted By JWoggon on 03 Jun 2010 04:11 PM
Thank you all for sharing your stories and your positive words of encouragement! Always remember that there is hope & healing for people living with scoliosis that does not involve bracing or surgery.
I just returned from a conference in Montreal where many well-known scoliosis researchers presented the newest advances in scoliosis bracing (www.sosort.org). The statistics presented at this meeting suggested that 50% of people who wear a brace are considered failures! It's important to realize that, for most individuals wearing a brace, if the scoliosis gets worse by less than 5 degrees, the physician will consider this a success. The purpose of bracing is to keep the curve where it is at, not to correct it.
Spinal surgery is a significant undertaking, and it's normal to feel scared about any invasive procedure. Once it's done, it's difficult if not impossible to undo. Surgery should be the option of last resort. Many people undergo surgery because they just want their worries about scoliosis to be over. Sadly, it's never that simple! 20% of patients need more than one operation, and scoliosis can continue to progress, even after the operation. Surgery is not the answer for scoliosis - it merely replaces one deformity (a flexible but curved spine) with another (a straighter, fused spine).
CLEAR Institute's website and forum are full of success stories from people who were told to either "live with" their scoliosis, or that surgery was their only option. The good news is, there is a better way! They tried it, and it worked for them. There's no reason that you can't overcome your scoliosis in the same way. I'm always happy to share more information and help you to find the answers you are looking for, so please don't hesitate to contact me on this forum or at my e-mail below.
Never stop smiling, and keep your chin up! :-)
Warmest Regards,
Dr. Josh Woggon
Director of Research, CLEAR Institute
jwoggon@clear-institute.org
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RE: 13 year old girl who have a 38.8 degree spine |
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| Topic Review |  | |
JWoggon
Moderator
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| 03 Jun 2010 10:11 PM |
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Thank you all for sharing your stories and your positive words of encouragement! Always remember that there is hope & healing for people living with scoliosis that does not involve bracing or surgery.
I just returned from a conference in Montreal where many well-known scoliosis researchers presented the newest advances in scoliosis bracing (www.sosort.org). The statistics presented at this meeting suggested that 50% of people who wear a brace are considered failures! It's important to realize that, for most individuals wearing a brace, if the scoliosis gets worse by less than 5 degrees, the physician will consider this a success. The purpose of bracing is to keep the curve where it is at, not to correct it.
Spinal surgery is a significant undertaking, and it's normal to feel scared about any invasive procedure. Once it's done, it's difficult if not impossible to undo. Surgery should be the option of last resort. Many people undergo surgery because they just want their worries about scoliosis to be over. Sadly, it's never that simple! 20% of patients need more than one operation, and scoliosis can continue to progress, even after the operation. Surgery is not the answer for scoliosis - it merely replaces one deformity (a flexible but curved spine) with another (a straighter, fused spine).
CLEAR Institute's website and forum are full of success stories from people who were told to either "live with" their scoliosis, or that surgery was their only option. The good news is, there is a better way! They tried it, and it worked for them. There's no reason that you can't overcome your scoliosis in the same way. I'm always happy to share more information and help you to find the answers you are looking for, so please don't hesitate to contact me on this forum or at my e-mail below.
Never stop smiling, and keep your chin up! :-)
Warmest Regards,
Dr. Josh Woggon
Director of Research, CLEAR Institute
jwoggon@clear-institute.org
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shay
New Member
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| 03 Jun 2010 06:11 PM |
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| heyy..im shay..i also have scoliosis and my back hurts every day..but i dont have any advice to give you because i need advice my self. but idk how to get surgery...:( |
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kitty
Basic Member
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| 24 May 2010 04:20 PM |
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| hope u feel better:D |
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KITTY
Basic Member
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| 24 May 2010 04:16 PM |
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| sorry for yur dease hope u feel better |
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snickers(trisha)
Basic Member
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| 19 Dec 2009 03:20 AM |
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| thanks and i stoped wearing my brace but i am so post to wear it...it hurt and it wasnt helping because when i went back it had moved 3 degrees and they are giving me one more chance... i am only 14 and its too much stress... i looked at the website and called them but it was too much money and my insurence wouldn't cover it so i realy cant go to clear insitute i am sorry.:( sorry, trisha |
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snickers(trisha)
Basic Member
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| 19 Dec 2009 03:16 AM |
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| yea its tuff but its worth it. i stoped wearing my. brace because i was tired of the pain so yea and i didnt feel like wearing it anyway my dr said i had to wear it unless i wanted surgery so i wore it for a few months and got bord with it where are you from anyway? i am from alabama,haleyville lol i am 14 now:cool: |
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Tayla
New Member
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| 10 Nov 2009 01:39 AM |
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| Hi my name is Logan Komon i am new here to all this so give me a break haha umm i just wanted to see if i could tell my story and also hear others, im 11 years old and i have a 41 degree in my lower back and a 21 in my upper back i just got diagnost in september so i have been having a really tuff time i understand what you aare going through and i know its hard but i have faith in you and i know you will make it!!!!!! thank you all |
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Dr. Bosler
Basic Member
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| 09 Oct 2009 05:38 AM |
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Hi :)
Get your back checked out then have your mom check out the web site for CLEAR. There is hope. Hang in there. |
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trisha(snickers)
Basic Member
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| 09 Oct 2009 04:47 AM |
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| thank you and i am the only one in my family who has it to.I just git into a wreck on my golfcart and i think i hurt my back some more and i am going to have an x-ray monday and i am kinda scared...the only sister who is here for me is michelle she my bff and she helps me so does my mom.:) please can you give me some advice |
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Dr. Bosler
Basic Member
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| 02 Oct 2009 04:45 AM |
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Hi Trisha,
There is hope for treatment without surgery!!!!!!!!!!!!!!!!!!!
Ok take a deep breath and have your parents check in to this treatment. 40 degrees is JUST a number...freaking out won't help you...well maybe just for a few minutes  but seriously, this is a very realistic treatment for scoliosis.
Let me know if I can help. I would be happy to speak with your parents if they have question regarding treat...or if you do. We are hear to help and keep you educated about alternatives.
You may post any question here or reach me directly at
suebosler@verizon.net.
Hang in there!
It will be ok |
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trisha (snickers)
Basic Member
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| 28 Sep 2009 06:20 AM |
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| i am 13 and just found out i have scoliosis and i am wearing a brace it hurts...anyway the dr sats if it moves 2 more degree they will do surgery and i am freakin out...will this help me ???:crying:crying: :crazy: |
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